The Peña for a Better Countrymade up of representatives from various sectors of national life, raised this Monday the urgency of passing a special law that cares for and protects people with autism (#LeyAutismoRD).
In a public letter to Congress National and the Dominican Society in general, signed by more than 200 members of La Peña, expressed that thousands of families in the Dominican Republic live in very difficult situations as they do not have the means or resources to adequately care for their sons and daughters within the disorder. of the Autism Spectrum (TEA).
“The need to declare a comprehensive and interdisciplinary approach to ASD is of national interest, creating a SPECIAL LAW that cares for and protects people with this condition”, underlined the entity.
“We, the members of the Peña por un Mejor País, a non-partisan entity, with representatives from different sectors of the Nation, express our full support for a SPECIAL LAW for the care and protection of people with autism”, the document stated.
Jorge Dargam, founder of La Peña, highlighted that since its foundation in 2016 they have tried to seek unity of criteria among the main day-to-day actors in the nation and unite wills for the construction of a better country.
“We cannot turn our backs on causes as human as these that affect thousands of Dominican families,” added Dargam in relation to the situation of the autism in a press release.
This initiative of La Peña is motivated by the testimony of the journalist Fernando Quiroz, one of its members, who together with his wife Iranna Flaviá Luciano directs efforts to improve the quality of life of his son Fernando Gabriel, 13 years old, and contribute with all ASD families.
Who signed the letter?
Among the signatories are the businessmen, Carlos José Martí, Guillermo León, Carlos Manuel Bonetti, Lucile Houellemont, Rafael Bisonó Estrella, Juan Tomás Díaz, Miguel Roig, Laura Peña Izquierdo, Raymundo Haché, Paul Brugal, Víctor Miguel Pacheco Méndez and Ciro Cascella.
Also, the presidents of the AMCHAMDR, Roberto Herrera; Adoexpo, Elizabeth Mena; Asonahores, Rafael Blanco Tejera; ASIEX, Alejandro Peña Prieto; ANJE, Jaime Senior; and from the chambers of commerce and production of Santiago and Santo Domingo, Carlos Iglesias and Manuel Luna, respectively.
Likewise, the CEO of Altice Dominicana, Danilo Ginebra, the executive president of Viva, Marco Herrera; the vice president of Grupo M and Codevi, Mercedes Carmen Capellán; the administrator of Banreservas, Samuel Pereyra Rojas; and the presidents of Motor Crédito, Benahuare Pichardo and ADOPEM, Mercedes Canalda.
In addition, the executive vice president of Finjus, Servio Tulio Castaños Guzmán; the JCE judge, Samir R. Chami Isa; the judge of the Constitutional Court, José Alejandro Ayuso; the prosecutor of the National District, Rosalba Ramos, and the president of Educa, María Waleska Álvarez.
Likewise, the executive vice president of Seguros Reservas, Víctor J. Rojas; the executive VP of ARS Reserves, Henry Fuentes; the executive director of ARS Senasa, Santiago Hazim; the president of Excel Group Alberto Cruz.
Also, the president of Acroarte, Emelyn Baldera; the General Director of Cinema, Marianna Vargas Gurilieva; the communicators Jatnna Tavárez, Miralba Ruiz, Luz García, Anibelca Rosario, Elianta Quintero, Gina Almonte, Soraya Castillo, Dionisio Soldevila, and Diulka Pérez.
In addition, the lawyers Olivo Rodríguez Huertas, Manuel Fermín Cabral and Guillermo Estrella. The filmmaker José Enrique -Pinky- Pintor, the cardiologist Víctor Atallah and the ambassador to Canada, Michelle Cohen.
The needs
In the letter, La Peña states that ASD families, in many cases, are made up of single mothers who lack the basics, which is why comprehensive policies are urgently needed to address core aspects that include diagnosis, treatment, health coverage, education, employment and recreation, without neglecting the protection of their fundamental rights.
He points out that they have information that the expenses of a boy or girl with autism in the country they could exceed RD$100,000 per month, in terms of coverage of adequate therapies, food, health and education, which is impossible to cover for even a middle-class Dominican family.
