He remained in critical condition for eight days before dying.
News Colombia.
This is the case of Juan Manuel, an 11-year-old boy who suffered from Gaucher disease and refractory epilepsy, died after spending two months without receiving his essential medication, Clobazam.
His mother, Luz Ángela Parra, denounced the lack of medication despite having comprehensive guardianship that guaranteed her son’s treatment.
The incident was reported in the Blu Radio media outlet, where the mother expressed her frustration at the negligence of the entities in charge of delivering medicines.
According to Luz Ángela, Juan Manuel had been receiving his treatment without problems for more than ten years, but since April supply problems began at the Audifarma dispensary, responsible for the delivery of Clobazam, a key drug for controlling Juan Manuel’s conditions.
“Juan Manuel had comprehensive guardianship”
“My son had comprehensive guardianship, which means that they could not deny him any treatment,” declared Luz Ángela, who also pointed out that, despite her constant visits to the pharmacy and having filed a right of petition with the EPS Compensar, she did not They received a solution.
The entities involved asked him to change his medication, but there was no equivalent that could replace Clobazam.
Desperate, the family searched for the medication in different pharmacies without success, which resulted in a decompensation in the minor’s health.
Juan Manuel remained in critical condition for eight days before dying.
The mother denounced the lack of response from the Government and the contradiction in the statements of the Minister of Health, who had denied the existence of a shortage of medicines in the country.
“The process at Audifarma is a walk of death, they make you stand in lines of 400 people to tell you that there are no medications,” he commented with indignation.
So far, no government entity has contacted the family to offer support or explanations about what happened.
Juan Manuel’s mother continues to fight so that her tragic story makes visible the lack of medicines that affects many patients with rare diseases in Colombia.
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