Arthur Cano
Newspaper La Jornada
Friday April 29, 2022, p. eleven
On the occasion of the celebration of Children’s Day, a round table entitled childhood with cerebral palsy
in which doctors and relatives of minors living with this condition participated, which at the same time launched the campaign again #PutInMyShoes, take the first step
.
Among the convening organizations were APAC, Fundación Teletón, Brains in Development and the Mexican Academy for Cerebral Palsy and Neurodevelopmental Disorders.
Mariana Domínguez, mother of Fernando, a four-year-old boy with this condition, described her son as cheerful. If the day to day is like a carnival, in the festivities Fer is explosive. He has decided to live as he pleases, if he wants to jump, he jumps, although obviously he has a hard time
.
Mrs. Rodríguez described how very complex
the process of rehabilitation and care of his son, and asked families to learn to listen to the opinions and feelings of minors.
It is a complex process of living and explaining. Because several disciplines are definitely required, but there is a point where it becomes a maelstrom
said Rodríguez, who stressed the importance of getting good treatments, because many times you can work madly on a goal that is poorly planned
.
Mrs. Rodríguez continued: The boys need kilos of therapy. Sometimes the play is left after therapy. And it can be complementary, achieving a balance of mental and emotional health
.
At the closing of the table broadcast on social networks, Mrs. Rodríguez drew attention to the fact that mothers and primary caregivers are almost invisible
and asked for a reflection on what the life of a caregiver is like and what their needs are.
The doctors, who work for various institutions that care for minors with cerebral palsy, highlighted the need for timely detection and interdisciplinary work by health personnel, as well as the collaboration of families.
Doctor Javier Zorrilla spoke of the need for timely detection, since it currently occurs probably
only in 40 percent of cases. Although there is talk, he said, that cerebral palsy affects four out of every thousand children, in Mexico we do not have reliable statistics, so a registry is needed that makes us react
as society and government.
Dr. Barragán stressed that in the care of minors with cerebral palsy Suddenly we are left with nothing more than the aspect of movement.
when it is necessary not to neglect the emotional part.
Jesús Alfonso Armijo, a specialist at the Children’s Hospital, stressed the importance of listening to parents and that health personnel make sure that they understand what happens and what they can do for their patient
.
