Medication crisis: “They are slowly killing my son because they are not giving them to him,” New EPS user

The lady Margarita Gutierrezuser of New EPS and mother of a patient with refractory epilepsy and cerebral palsydenounced the serious situation that his family faces due to the Prolonged interruption in the delivery of high-cost medications essential for the life and stability of your child.

He stated that after the suspension of the medication delivery service in Colsubsidiofrom the past January 1, 2026has had to live through moments of anguish when he did not have the medications for his son’s treatment.

“I feel like they are slowly killing my son by denying him medication, because his life depends on them.” high cost medications for a very difficult epilepsy and that is why I complain to the New EPS so that it assumes its responsibility with patients with this type of diseases,” he said.

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Pending medications

According to him, the formulated medications have been delivered under the figure of “earrings”which end up being lost after months of waiting, despite the fact that he claims they would have already been invoiced by the pharmaceutical operators.

“If they give us pending orders it is because they have already invoiced the medications; we just need to deliver them. But then they tell us that those pending orders are lost and that the department must solve this.” New EPS”, he stated.

The woman explained that these are not low-cost drugs. The most economical exceeds the 280 thousand pesoswhile others reach values ​​of 300 thousand and even more than 400 thousand pesosand your child requires four different medications in high doses to avoid seizures. “Without them, your life is in danger,” he said.

Unanswered legal actions

Given the lack of institutional response, the family has filed legal actions.

“We have a guardianship and we are thinking of a disrespect. Last week I tried to file it, but it was returned. “We are going to insist because we don’t know what else to do,” he said.

As the only alternative, he stated that in the same New EPSthey have suggested taking the patient to emergencies when he has a serious seizure, a solution that the mother considers insufficient and cruel. “They medicate him for one day and return him home without ongoing treatment. That is not a solution.”

Margarita Gutierrez harshly questioned the lack of responsibility of the EPS against chronic and high-cost patients.

“That the New EPS Take responsibility for your patients and don’t play games with them. We understand that health is managed as a business, but here we are sacrificing life and the human dignity for profits,” he said.

The situation has forced the family to carry out collections, pawn belongings and deprive themselves of food to be able to partially buy medicines.

“We have gathered two or three million pesos a monthbut we only manage to buy half of what he needs,” he explained.

Furthermore, he denounced that the recoveries filed with the EPS have been lost and the money has not been refunded.

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A long-standing illness

The patient has 34 years and lives with his condition from birth, after being born premature and develop cerebral palsy.

To the two and a half years was diagnosed with refractory epilepsya severe and drug-resistant form. Although he was subjected to the implantation of a vagus nerve stimulatorits stability depends strictly on the continuous pharmacological treatment.

“Every seizure kills millions of neuronsand no one replaces that. As long as he was on his full medications, he had a good quality of life. But a year ago they began to give them to them in dribs and drabs and for three months you do not receive any“, he said with concern.

Finally, the mother warned about the physical and emotional deterioration of your child and the impact on the entire family.

“He knows that something is happening, although he cannot express it. He has crises, hysterical attacks, he deteriorates more every day. This is a enormous mental and emotional exhaustion. Patients like my son are killing slowly”.