The little boy turned one year old in November 2021 and accessed his medicine that same year.
Derek Pinargote, practically, it became a symbol of the struggle of patients with Spinal Muscular Atrophy (SMA), disease that required medicineZolgensma) valued at 2 million dollars and considered the most expensive in the world for its treatment.
The Ecuadorian State provided this medicine on October 28, 2021, after months of struggle by Derek’s parents.
And although treatment has already started, it was internship on several occasions and this 2022 he had surgery to place a gastric button, which helped improve his diet; but he lost the battle. This is how this was known January 23, 2022.
The little one joins Amberly and Iranwho had the same condition (AME).
In Ecuador there are 19 registered cases of children with SMA, according to the latest official figures released by the Ministry of Health. (AVV)
