In one humble dwelling of the La Cruz sector from San Cristobal, Fatima Sánchez LIBRA LA battle more difficult lifeto save his 13 -year -old son, Anyel Lorenzo Sánchezdiagnosed with refractory epilepsya neurological condition that does not respond to medications and that can only be controlled with a Specialized Surgery.
His mother explained that Anyel was born with Microcephalybut its development was relatively normal until after the pandemic. It was then that the convulsive crisis that little by little they transformed their routine and that of the entire family.
Before the disease advanced, Anyel regularly attended the Special Schoolhe shared with his companions and dreamed with a different future. But the seizures Constant forced him to leave the classrooms. Today, his life passes between medicines, doctors visits And his mother’s arms, who does not separate from him.
“Seeing him fall to the ground, convulsing without being able to do anything, is a pain that is not explained. I am a desperate mother, she is my only child, and my soul splits to see him suffer like this, ”said Fatima, with a broken voice.
You can read: The tireless arms of a mother who drives the motor skills of her child
Surgery
The specialists that attend to teenager They have recommended one Bilateral radiofrequency taomotomyan iHigh complexity nnter a cost of one million four hundred thousand pesos. As explained by the doctorsthis operation It can significantly reduce seizures and give Anyel a better quality of life.
But this amount is impossible to pay for the family. Fatima can’t work because you must be at careful constant of her child, while her husband, with her salary, barely manages to cover the 25 thousand pesos per month in medications that Anyel needs to stay stable.
“We do not have the resources. Everything that enters the house goes into medicines, and yet they fail to control their crises. Only surgery can give him the opportunity to live in another way, ”the mother lamented.
Said they are waiting for the High cost program I gave them two types of medicines from the four that Anyel needs to continue living. He regrets that the program will only be delivered for 3 months, and that after there the fight will begin again for medications.
Solidarity
Aware that by itself you cannot gather money, Fatima has decided to raise her voice. He directs his request to President Luis Abinader, the First Lady Raquel Arbaje, to the Minister of Health, Víctor Atallah and any friendly hand that can extend his help.
“I only ask for an opportunity for my son. He does not deserve to live like this, tied to a disease that limits him and that makes him suffer. I’m playing doors, trusting someone listening to me ”he expressed with the hope that his story will reach the right instances.
Disease
Refractory epilepsy is one of the most severe forms of this neurological condition. Those who suffer from it suffer constant crises that cannot be controlled with drugs, which affects their development, their learning and social integration.
In Dominican Republicmany families face the same reality: expensive treatments, difficult access medications and surgeries that are not available to the majority. Cases such as Anyel highlights the need for a healthcare system more inclusive and supportive with Chronic and rare diseases.
Hope
Despite the difficulties, Fatima does not lose faith. Every day he prays so that the aid arrives and his son can undergo surgery that could change everything. “God gave it to me, and I’m going to fight until the end for Him. I will not rest until I see him better”he says.
Meanwhile, Anyel Follow your daily struggleaccompanied by the unconditional love of his mother, who has become his strength and his voice.
“I am a desperate mother, but also a mother full of hope. I know someone out there can hold our hand. My child deserves to live. ” Contact for help (829) 655-3578
